Here we go again ...

So I haven't mentioned it much before, but my daughter has an eosinophilic disorder ... typically this is classified as an upper GI disorder called Eosinophilic Esophagitis or EE ... she has been lucky (at least so far) in that hers has been considered an EGID (Eosinophilic Gastrointestinal Disorder) affecting her large and small intestine but luckily not affecting her esophagus .... the reason the esophageal kind is worse is that the esophagus is actually much thinner and fragile than the lower GI ... the disorder can lead to lesions and even tears in the esophagus ... which leaves kids on feeding tubes in order to save the esophagus ....

Well, my daughter had a well-child visit yesterday and she has had some issues lately .... she complains of chest pain
frequently .... so for any "normal, healthy" kid this means antacids and that's pretty much it ... for her it means more GI appointments ... and an endoscopy and probably some other fun tests (including one she's had before where they implant a sensor in her esophagus and read her acid levels for several days) ... so we're back into medical fun times there ....


Also, my son who was in the hospital in the fall was cleared by the pulmonologist several weeks ago to return to normal activity, only to end up very sick again this week with a possible pneumonia ... he will have a chest x-ray on Friday if there is no improvement .... so here we go again ....

Hopefully both of these things turn out alright ... but only time will tell ...